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Fotoula Maitianos travels to Mexico amid pandemic for multiple sclerosis stem cell treatment

In December 2013, Foutoula Maitianos was diagnosed with Multiple Sclerosis (MS) – a condition of the central nervous system that affects mobility and can cause fatigue and memory loss.

Almost seven years later in 2020, the South Australian mum-of-two saw her condition deteriorate significantly to the point where she relied on a walking frame or wheelchair.

“My walking deteriorated, I started getting headaches, fatigue, it was becoming a struggle,” Ms Maitianos told ABC News.

Ms Maitianos knew the goal for people living with MS was to stop symptoms from getting worse, but none of her treatments were doing that.

“I was worried because I was on a few different treatments and I was still deteriorating,” she says, explaining she spent 18 months on intravenous drug Ocrevus (Ocrelizumab).

Her hopes turned to an experimental treatment called autologous haematopoietic stem cell transplant (AHSCT).

Fotoula Maitianos. Photo: ABC News / Fotoula Maitianos.

What is AHSCT?

AHSCT is a procedure that involves harvesting stem cells from patients, giving them doses of chemotherapy, then replacing the stem cells in the patient’s body. The aim is to ‘reset’ the immune system to stop it attacking the body.

According to MS Research Australia, the nation’s leading non-profit organisation for MS research and advocacy, AHSCT carries a higher risk than most currently approved therapies.

“We know that AHSCT can have some significant effects on the body such as a high risk of severe infections, effects on fertility, and an increased risk of cancers,” the organisation said in a statement to ABC News.

It said while there had been no deaths among about 50 people who have received AHSCT in Australia in the past eight years, the average mortality rate from international studies is 1.3 per cent.

Despite this, Ms Maitianos felt like AHSCT was still her best option.

Ms Maitianos and her husband, Peter, travelled to Mexico for treatment. Photo: ABC News / Fotoula Maitianos.

The only problem was that the treatment was only available in Australia through three observational clinical trials at Sydney’s St Vincent’s Hospital and in Melbourne at Austin Health and The Alfred Hospital.

Ms Maitianos’ doctors warned she may not be eligible but as the treatment was available in several countries overseas, she decided to head to Mexico despite the raging COVID-19 pandemic.

“It was scary, very scary, but I knew I had to do it, I didn’t care what was going on,” she told ABC News.

On a mission to Mexico:

Ms Maitianos and her husband, Peter, left for Mexico in October 2020, making provisions for their children while they were away for six weeks.

They were supported by friends, family and the wider community in fundraising to cover the costs of the trip and medical treatment. They also had to get an exemption to be able to leave Australia in the first place.

Ms Maitianos receiving the AHSCT treatment in Mexico. Photo: ABC News / Fotoula Maitianos.

“It was crazy because my family and friends were saying ‘Are you sure you want to go?’ because we knew there were a lot more cases [of COVID-19] than in Australia,” Ms Maitianos says.

But still, she has no regrets as once she reached the Mexican treatment facility, she was able to not only receive AHSCT, but also connect with fellow MS patients from across the world.

“There were 14 to 15 of us and because of COVID we all had to stay in, we couldn’t leave the facility, we got along so well… It was great to have the support,” Ms Maitianos told ABC News.

After returning to Australia, Ms Maitianos quarantined in Sydney for two weeks before isolating herself at home for several months due to her low immune system.

And while it is too soon to know whether the treatment has worked, Ms Maitianos feels it was the right choice for her.

“My hope is that it just stops in its tracks where it’s at, that’s the whole point of this treatment,” she says. “For now I’m very hopeful. It is a rollercoaster the first few years after treatment.”

Source: ABC News.

Natasha Karamanis calls for action after horror crash at ‘dangerous’ Sydney intersection

Young mum, Natasha Karamanis, who was involved in a horror crash at an intersection in Sydney’s north, has joined hundreds of others in calling for urgent council action.

According to The Daily Telegraph, an online petition calling for an upgrade at Old Pitt Town Road and Terry Road in Box Hill has attracted almost 2000 signatures so far.

It claims the intersection is “dangerous” because of an “overlap” between the right hand turning lanes from Old Pitt Town Road into Fontana Drive and Old Pitt Town Road into Terry Road.

With the opening of nearby school, Sancta Sophia, later this year, residents also expressed their concern over more motorists in the area, particularly those “unfamiliar” with the intersection.

The intersection. Photo: The Daily Telegraph.

“It just doesn’t sit well with me that we are about to add parents with children attempting to get to school on time, together with large construction trucks trying to navigate this intersection together,” petition organiser, Evana Geering, told The Daily Telegraph.

“It’s a disaster waiting to happen.”

For Natasha Karamanis, she was hospitalised after she was involved in a “pretty bad” crash last Thursday at the same intersection.

The mother-of-four told the newspaper she was driving on Old Pitt Town Road after finishing work at about 5.45pm. As she entered the intersection intending to go straight down Old Pitt Town Road towards Rouse Hill, her blue Toyota Corolla collided with a white SUV which was turning right on Terry Road.

Mother-of-four, Natasha Karamanis, of the Gables, was hospitalised after she was involved in the crash. Photo: The Daily Telegraph.

“Before I knew it we hit. I didn’t see her… I think she didn’t see me because of all the cars turning right,” Ms Karamanis said.

“It was lucky because I was doing 60 (in a 70km/h zone). I can’t imagine what would’ve happened if I was doing the speed limit.”

Ms Karamanis was taken to hospital with concussion and required scans for her chest, stomach and leg injuries, The Daily Telegraph reports.

She was released from hospital on Monday with bruises, but said she is still “traumatised” from the crash.

The intersection at Old Pitt Town Road, Terry Road and Fontana Drive in Box Hill. Photo: The Daily Telegraph.

“It took me this to realise what a dangerous intersection it is… With the bank up of cars on opposite sites, you can’t see people going straight,” she said.

A Hills Shire Council spokeswoman told The Daily Telegraph it is working with Transport for NSW to upgrade the intersection at Old Pitt Town Road, Terry Road and Fontana Drive in Box Hill.

“Council anticipates the detailed design to be completed in August 2021, and this design includes plans for the installation of traffic signals,” the spokeswoman said.

Source: The Daily Telegraph.

Woman arrested for allegedly working at Darwin souvlaki shop closed by health officials

A woman has been arrested for allegedly continuing to operate a business ordered to temporarily close for breaching coronavirus health directions, the ABC reports.

Darwin’s lockdown, imposed to slow a COVID-19 outbreak linked to a remote gold mine, lifted last Friday, but people are still expected to wear masks in confined spaces and check in to businesses.

Northern Territory Police say they visited a Nightcliff business, which the ABC understands to be the Souvlaki Grill and Chill, on Tuesday night to issue a closure notice after “a number of visits” during the week.

Police allege several people were not wearing masks during the Tuesday night visit and there was no way for people to check in to the business, contrary to health directions.

According to the ABC, the business was ordered to temporarily close and fined $25,280.

A woman has been arrested for allegedly working at a Darwin souvlaki shop which was ordered to close by health officials.

Despite this, NT police confirmed they returned to the store on Wednesday afternoon and arrested a female employee who they say was continuing to work at the store.

Before the arrest, authorities said the actions that led to the closure notice were disappointing. 

“It is astounding that individuals are still failing to comply with restrictions imposed by the CHO for serious public health concerns,” Incident Controller, Sachin Sharma, said in a statement released before the arrest.

“Shutting down a locally owned business is the very last thing any of us wanted to do at this time.”

Police said the business was given “ample opportunity” to comply with directions throughout the week. It will remain closed until compliance officers are satisfied health directions will be met.

The business declined to comment to the ABC.

Source: ABC News.

Mitsotakis and Chinese President Xi discuss investments, trade and Eastern Mediterranean

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Greek Prime Minister, Kyriakos Mitsotakis, and Chinese President, Xi Jinping, discussed investments, bilateral trade, tourism and cultural collaboration during a phone call on Wednesday.

The conversation was held on occasion of the 15th anniversary of the “Integrated Strategic Partnership” agreement (2006), which upgraded Greece-China relations from the level of constructive engagement to a strategic partnership.

The two leaders discussed China’s role in consolidating stability in the Eastern Mediterranean, as a permanent member of the UN Security Council.

Greek Prime Minister, Kyriakos Mitsotakis (L), and Chinese President, Xi Jinping (R).

Mitsotakis expressed Greece’s appreciation for China’s stable stance in favour of settling the Cyprus issue on the basis of UN Security Council decisions.

According to CGTN, Mitsotakis also hailed the progress China has made in poverty alleviation by describing it as “a miracle of human progress history.”

Finally, Mitsotakis accepted an invitation to attend the 2022 Winter Olympics, to be held in Beijing.

Source: Ekathimerini.

Sydney tycoon, Bill Papas, returning to Australia following Westpac fraud allegations

A court has heard Forum Finance boss, Bill Papas, who is at the centre of the alleged $250 million Westpac fraud, has booked a flight to return to Australia from Europe on Saturday, The Sydney Morning Herald reports.

Westpac announced it was investigating a potential serious fraud on Friday, after it said it had discovered loans had been given to its corporate customers using forged signatures and falsified invoices allegedly produced by Forum Finance.

Westpac alleges that it has not been able to contact Mr Papas since June 15, soon after it made inquiries about the potential fraud, the SMH reports.

Panetta Lawyers principal, Rocco Panetta, who has been hired by Mr Papas, told the court on Wednesday he had spoken to his client around five times over the past seven days.

According to the SMH, Mr Panetta said Mr Papas had refused to disclose his exact location or explain whether he intended to defend the allegations against him, but that he had booked a Japan Airways flight back from Athens via Dubai to arrive in Australia on Saturday.

Westpac’s fraud allegations have been taken to court.

READ MORE: Westpac fraud: Sydney tycoon Bill Papas seen in Greece following fraud investigation.

“I understand he’s in Europe, in transit, making his way back to Australia,” Mr Panetta said. “I understand he was in Greece, I don’t know where he is now, but I think he is moving through other countries to make his way back here.”

When pressed for details of Mr Papas’ overseas travel, including when and why he left Australia and his current location, Mr Panetta said he was stonewalled.

“We did ask, he wouldn’t tell us,” Mr Panetta said.

Westpac has issued freeze orders and search warrants to obtain information related to the alleged fraud, and is now pursuing legal action to have Forum Finance put into provisional liquidation, an emergency measure to protect assets, the SMH reports.

Westpac alleges that it has not been able to contact Mr Papas since June 15.

Federal Court Justice, Michael Lee, said he had not made a final decision on the liquidation application, which presented a “serious intrusion” into a company’s affairs but rejected the application to adjourn the Friday hearing.

Mr Papas has been director of Forum Finance since 2011, a Sydney-based firm that leases equipment and provides digital and administration services to third parties.

A number of clients contacted by The Age and Herald, including NYSE-listed manufacturing firm Boston Scientific, said they were surprised by the lawsuit.

“We’ve never experienced any real issues at all,” said Boston Scientific Australian managing director, Martin Baker.

“We use them for pretty basic administration services, like printer management. It’s one of those things where if you’re horrendous at it, you notice but if they do it well, you don’t notice.”

The case continues.

Source: The Sydney Morning Herald.

Voting, language, digitisation: Greece’s Deputy Minister for Foreign Affairs talks with diaspora

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The Deputy Minister of Foreign Affairs for Diaspora Greeks, Konstantinos Vlasis, has addressed the Australian Hellenic community in a special online dialogue series tonight to discuss the digitisation of Consulates, voting rights, the Greek language and a ‘Day of the Geek Diaspora.’

The event, which was organised by Paul Nicolaou, Director, Business Leaders Council, Australian Chamber of Commerce and Industry, and Christos Karras, the Consul General of Greece in Sydney, was attended digitally by over 100 people from across Australia.

This included, but is not limited to, Mr George Papacostas, the Ambassador of Greece in Australia, Ms Katia Gkikiza, the Trade Commissioner of Greece in Sydney, Ms Georgia Karasiotou, the Consul of Greece in Perth, Mr George Psiachas, the Consul of Greece in Adelaide, other prominent members of Greek community organisations, and distinguished guests.

Mr Bill Papastergiadis, the President of the Greek Community of Melbourne, was also in attendance and was given a special mention by Mr Vlasis for his active work in the Australian Hellenic community.

Diaspora voting:

One of the first topics Mr Vlasis touched on during the online talk was ‘diaspora voting,’ which he described as one of his top priorities.

“We consider Greeks abroad an important part of our nation and we want them to be politically aware… and to have a say by voting in national elections,” the Deputy Minister stressed.

READ MORE: Greece vows to abolish all voting restrictions for Greek diaspora.

Over 100 people attended the event. Photo: Argyro Vourdoumpa / The Greek Herald.

Mr Vlasis went on to say that although the Greek government faced push back from the Opposition when trying to abolish all voting restrictions of the Greek diaspora, he still hopes all eligible people will vote in the next national election.

As it stands, all Greek citizens living abroad have the right to vote if they can prove that they have lived continuously in Greece for two years in the last 35 years.

“I encourage you all to participate massively,” Mr Vlasis said.

Digitisation of Consulates in Australia:

The Deputy Minister continued his enlightening discussion by touching on his second priority as a Minister – that is, the digitisation of Greek Consulates globally.

Mr Vlasis stressed that in Australia, the digitisation of the Greek Consulates in Melbourne, Sydney, Adelaide and Perth is all underway with the help of a new digital platform called, myConsulLive.

This program offers diaspora a fast and easy way to communicate with officials and apply online for documents and certificates.

READ MORE: Greek Consulate in Perth begins digitisation as part of new Greek pilot program.

“People can get their birth certificates within a few weeks and not a few months, like it is now,” Mr Vlasis said. “We want to cut the red tape… in order to gain citizens’ trust.”

From there, Mr Vlasis went on to say that the Greek government is also working on enabling Consulate staff to physically visit citizens in need.

“[Our staff] will do outreach visits to collect passport applications in remote areas… this shows we remain close to our diaspora in practice,” he said.

The Greek Language and Diaspora Day:

The third and final priority which Mr Vlasis discussed with attendees was the Greek language and how the Greek government is implementing initiatives to maintain it.

Three initiatives described by the Deputy Minister were: (1) the Sta Ellinika app, which is a free digital platform for Greeks abroad to learn about the Greek language, mythology and culture from home, (2) ‘Nostos- The Return’ initiative, where Greek and Cypriot diaspora will visit Egypt to learn about the local expatriate communities, and (3) new university courses which can be studied in Greece in the English language.

Konstantinos Vlasis.

“Many young members of the diaspora would like to study in Greece but can’t because they can’t speak Greek,” Mr Vlasis explained.

“But we are more than willing to facilitate the young diaspora of your communities… get in touch with their Greek language.”

On this, Mr Vlasis went on to stress the importance of the youth and, more generally, the Greek diaspora in contributing to the success of Greece and that’s why the government wants to create a ‘Day of the Geek Diaspora’ and is asking people to make submissions on a date.

This day would recognise and honour, on an annual basis, the historical role and valuable contribution of the Greek diaspora in Greece, Mr Vlasis said.

“We have had a huge amount of submissions so far… Greeks can boast of having ingenious ideas once again,” he said.

Mr Vlasis, who was celebrating his birthday, concluded the talk by stressing to the Greek diaspora that “we want you back.” The over 100 participants then finished up the event by singing him happy birthday.

READ MORE: Greek government calls for public submissions on date for Greek Diaspora Day.

Greek Australian Michael ‘Triki’ Trikilis on discovering his passion for breakdancing in Greece

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Michael ‘Triki’ Trikilis is a fixture in the Northern Territory’s breakdancing scene.

He recently spoke with the ABC’s Miranda Tetlow about spending his childhood between Darwin and Kalymnos, being hit by 18,000 bolts of lightning, and discovering his passion for break dancing.  

Triki was born in Karama, Darwin, and moved to Greece with his mum and extended family at just seven-years-old. 

He describes Kalymnos as “a really beautiful jail” but admits it taught him some hard lessons early on in life. 

“I felt like my personality, especially being born in Darwin in Australia, was a bit too colourful… a bit too unique for everyone in Kalymnos,” he says.

“When I moved to Greece, I didn’t know how to speak much Greek,” he says, explaining that he “got a… bit of racism too, being the only non-Greek speaking kid there….”

“I didn’t really understand why I was viewed differently, even though I looked and behaved the same, I just didn’t understand the language.”  

Breakdancing was Triki’s lifeline during his time in Greece. 

He first came across the Olympic sport while on a school trip in Athens. 

He says he was blown away by the diversity and multiculturalism within the circle and noted it was “very foreign to everybody [else] but pretty familiar to me”. 

He introduced themselves to the group and the rest was history. 

He says he and his friends rose to the ranks of some of Greece’s best breakdancers in competitions that were held between 30 and 40 schools across twelve islands, including Kalymnos. 

“It was the first time my principal ever looked like he was that proud of me at school,” he says.  

“I was normally the kid that got in trouble and then we brought in a Panhellenic trophy that was silver that didn’t fit in the trophy cabinet at the school.” 

“There’s so much freedom in [break-dancing],” he tells ABC’s Late Lunch.

“You can be happy, angry, funny, you can be anything.” 

“It’s like your superhero [or] supervillain identity.” 

Source: ABC Radio

‘Beyond our control’: Greek Australians risk hundreds in fees for flight cancellations

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What would be a nine week-holiday in Europe for the Melbourne-based Kalamaris family in July 2020, has ended up to countless hours spent online on flight and accommodation cancellations, re-bookings and refund requests. 

“I organised a family trip to Europe. To Italy, France, Greece and the Greek islands. I had booked flights with multiple airlines, accommodation and car rentals, then COVID hit.

“It took me many months and time to get refunded and rebook as my travel insurance policy was not covering for the pandemic and this is something I also had to deal with.” 

After negotiations, Mr Kalamaris says he has received refunds or vouchers for most of the international and domestic flights and accommodation he booked but claims there are still airline operators in Greece who charge hundreds of dollars without taking into consideration their circumstances.

“When I explained that I am unable to leave Australia, most of the operators, including two Greek ones, provided me with vouchers that have an 18-month expiry from date of issue. In the instance that I am unable to use the vouchers, then I will receive full reimbursement plus 10% on top.”

However, the Greek Australian’s experience was not the same with other airline operators.

“With Sky Express I booked two flights from Corfu to Athens and Zakynthos to Athens. I paid once to change one of the flights last year, but now that I am asking for a full refund for the flights that are due later in July, I am called to pay a total of 380 Euro for two flights, which equates to $600.”

In emails seen by The Greek Herald the operator says that their routes operate as usual and due to the fact that they were not cancelled by them they “can proceed with refund or rebook of your tickets according to the fare rules of your tickets.”

Mr Kalamaris says he was aware that a cancellation fee was in the ticket’s Terms and Conditions but wonders how it is fair for consumers to be paying “regular cancellation fees given they have no other choice.”

“These were the terms and conditions but this situation is beyond our control. I can’t continue to be paying fees for flights sometime in the future when we have no idea if and when we will be able to use them,” he says, appealing to the company to rethink their policies for Australian travellers.

Due to the COVID-19 pandemic, Australians cannot leave the country unless they are granted an exemption. Australian citizens can apply for an exemption to leave the country for a number of reasons, including on compassionate or compelling grounds and for urgent or unavoidable personal business

Last week, it was announced that Australia will temporarily reduce its intake of international passengers by 50 per cent over concerns about the highly transmissible Delta variant while nearly 34,000 Australians are still waiting to return home from overseas.

Sky Express was contacted for comment but has not responded.

President of St George Greek Orthodox Community clarifies ‘inaccurate’ exposure site listing

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The president of St. George’s Greek Orthodox Community in Brisbane has sought to clarify which of its venues have been exposed to COVID-19. 

Michael-Angelo Anastas is the President of the Greek Orthodox Community in St. George and says the organisation has been the victim of confused public health messaging. 

“[The Queensland Government] refer to it as the community centre, and they shouldn’t be referring to it as that,” Mr Anastas said, clarifying “it’s the administration building on Browning Street which sits on the street opposite to where The Greek Club is.” 

The Greek Club and the Greek Orthodox Church of St George are not to be confused as COVID-19 exposure sites, Mr. Anastas clarifies (Photo: Brad Fleet)

Mr. Anastas’ comments follow the blur that’s been caused since the Queensland Government’s listed the administration building as ‘Greek community centre’. 

He says the listing was inaccurate as there has been no exposures associated with The Greek Club, church or childcare buildings. 

Chief Health Officer Dr Jeannette Young confirmed Queensland Health would update its information. 

“The Metro South Public Health Unit (PHU) has today clarified with the Director of the Greek Orthodox Community of St George about concerns relating to the naming convention on the Queensland Health contact tracing website,” Dr Young said. 

“Information on the website will be updated to reflect that only the Administrative Building within the complex was affected and considered to be an exposure venue. I can confirm that other buildings within the centre are not a venue of concern at this moment.”

About 80 staff and volunteers from the Greek Orthodox Community of St George’s administration building are isolating after being deemed close contacts of two diagnosed cases. 

They all have tested negative. 

“They are doing well, looking after their safety and wellbeing is the main thing. We’re looking at ways to support them and make sure they can get through the 14 days or however long Queensland Health wants them to remain that way,” Mr. Anastas said.

Source: Courier Mail 

Grieving relatives angered at St Basil’s over COVID deaths memorial service

Grieving relatives of the 45 elderly Greek Australians who died from COVID-19 at a St Basil’s aged care home in Fawkner, operated by the Greek Orthodox Archdiocese of Australia, say that a one-year memorial service is the first meaningful contact they’ve had from the home. 

Father Evmenios Vasilopoulos, chair of St Basil’s Homes for the Aged, invited the families to the service to take place at the end of the month. 

The letter said the home extended their “deepest sympathies and condolences to the families, friends, residents and staff” affected by the deaths, according to a report from The Age

In July last year, 94 of the 117 mostly Greek and Serbian-born residents, and close to 80% of its staff members, were infected after COVID-19 spread uncontrolled throughout the home in Fawkner. 

Relatives who spoke to The Age on Monday said they were disappointed the offer to attend a one-year memorial service was the first meaningful contact they’d had from St Basil’s since their parents had died.

Source: The Age