Greek Australian Jennifer Brankin’s film to document her son’s rare condition

·

Alexander, aged 6, was diagnosed with a rare brain disorder at a young age. 

His mother, Greek-Australian photojournalist Jennifer Polixenni Brankin, has decided to kickstart a new film to document his journey with the condition as part of her promise to him: to show him the world. 

Alexander’s journey

What do you do when your five-and-a-half-month-old is diagnosed with a rare condition that you’ve never heard of? 

Better yet, having to support your newborn living with this condition as a single parent? 

These were the predicaments that Jennifer Brankin found herself in around six years ago. 

Jennifer Brankin found herself in tough predicaments six years ago (Source: ABC)

She was pregnant with her first child but developments in her pregnancy gradually started to worsen. 

Her son Alexander was the size of a 28-week old when Jennifer was 35 weeks pregnant. 

“The consultant who came to speak with me said there was something very wrong with my baby and that, ‘This wouldn’t end well,” she recalls. 

Brankin was rushed in for an emergency C-section after Alexander stopped moving. 

Plenty of time in ICU care, multiple surgeries, hospitalisations and many testings later and Alexander was diagnosed with Joubert Syndrome. 

Joubert Syndrome is a rare condition that affects brain development and body function in young children.

Brankin says she “wanted the ground beneath [her] to crack open and swallow her whole” but has helped Alexander live with the condition. 

“After living for a decade in America, I knew that Alexander was lucky to be born in Australia, to have access to our excellent health care system,” she says.

Alexander’s condition meant that he had to be fed through a g-tube at one point. 

“A Greek mothers dream come true, come on, who doesn’t want direct access to their kids stomach to feed them the latest creations to come from the kitchen?!,” Brankin writes. 

‘Expecting the Unexpected’ documentary will follow Alexander’s journey

Midwives have their work cut out for them as it is, but capturing an emergency C-section with their patient’s D-SLR camera? 

That idea would only come from a photojournalist and it’s this footage that will compose a new documentary to be released this year about Alexander’s life journey. 

Jennifer (right) with her son Alexander (left) (Source: GoFundMe)

Brankin has enlisted the help of industry colleagues to bring the film into fruition in the hopes of sparking conversations about navigating complicated health conditions like Joubert Syndrome. 

Brankin says she didn’t want Alexander’s time in hospital to be his “only memories” and so she made a little promise to him: to show him the world. 

Jennifer Brankin was once facing the likely prospect of having a stillborn baby and now travels and lives with her son Alexander. 

Source: Expecting The Unexpected

Advertisement

Share:

KEEP UP TO DATE WITH TGH

By subscribing you accept our Terms of Service and Privacy Policy.

Advertisement

Latest News

Hellenic spirit shines at the opening of the Odyssey Greek Festival 2025

The opening night of the 2025 Odyssey Greek Festival was a vibrant celebration of culture, memory, and community

Areti Ketime brings the spirit of rebetiko to Melbourne for the Zeibekiko Festival

The Zeibekiko Festival has returned for its third year this month with a lively Rebetika performance in Melbourne by singer Areti Ketime. 

Literary memorial in Sydney honours the legacy of esteemed scholar Dr George Kanarakis

A literary memorial in honour of Greek academic and internationally renowned linguist of Australia, Dr George Kanarakis, was held on Tuesday.

Memorial service to be held in Sydney to honour the life of Chris Felemegas

A memorial service will be held in Sydney on Sunday, October 12, to honour the life of Chris Felemegas, a figure remembered for his warmth.

Greek Deputy Foreign Minister Ioannis Loverdos meets Archbishop Makarios in Sydney

Greek Deputy Minister of Foreign Affairs for Hellenism Abroad, Ioannis Loverdos, met with Archbishop Makarios of Australia on Tuesday.

You May Also Like

Key decisions await as GOCSA hold first meeting after elections

The Electoral Committee of GOCSA has announced the successful candidates elected to the Administrative Council for the 2025-2026 term.

Nick Galatas on Australian National Second Division: ‘It’s time’

AAFC Chairman Nick Galatas says that the NPL football system has, for far too long, been limited and disconnected from reaching new heights.

Maras and Arsenikakis propose eight-storey development in Adelaide

A proposed mixed-use development just outside Adelaide's CBD could rise to eight storeys, featuring 300 dwellings and 1,000 sqm of space.