How Australia’s first youth hospice provides relief for Angelina Lati

·

When Angelina Lati was in year eight, her life changed. She began stumbling on stage and experiencing fainting spells and seizures. At age 14, she was diagnosed with Lafora Disease, which is a form of childhood dementia.

Many Australians don’t know much about childhood dementia, which is progressive brain damage that starts before the age of 18. There are over 70 types of the disease, each caused by changes in the DNA because they are genetic diseases.

The signs and symptoms themselves are similar to those you might have seen in an elderly relative suffering from dementia. They include for example, lack of concentration, memory loss, personality and behavioural changes, and even loss of speech and mobility.

Since The Greek Herald last spoke with Angelina’s mum, Niki Markou, in 2021 about her diagnosis, Angelina has been spending time at the Manly Adolescent and Young Adult Hospice.

Angelina Lati. Photo: Supplied

Located at the former Manly Hospital Site at North Head, the newly constructed hospital is Australia’s first dedicated service for 15 to 24-year-old patients with life-limiting illnesses.

Families stay in rooms inside the facilities and can speak with social workers, clinical psychologists, bereavement counsellors, and psychiatrists. For many families, this is the first time they could live together.

“We have relief here… and fun. It’s beautiful. It’s like we have a life now,” Niki told The Daily Telegraph about their family’s time in the hospice with Angelina.

“It’s like a family. And that’s what she needs, you know, because she needs that comfort and, you know, especially when you’re scared.”

Source: The Daily Telegraph

Advertisement

Share:

KEEP UP TO DATE WITH TGH

By subscribing you accept our Terms of Service and Privacy Policy.

Advertisement

Latest News

Fasolada: Niki Louca shares recipe for baked beans with tuna salad

Fasolada is one of those comfort foods that reminds us of grandparents, Greece, cold days, warm houses, fresh homemade bread.

Hellenic Writers’ Association of Australia call for ‘O Logos’ magazine submissions

The Hellenic Writers’ Association has called on members and Greek Australians to submit original works to the 2024 edition of ‘O Logos.’

Indian Hellenism: Bactria and the Indo-Greek Kingdom

The Indo-Greek Kingdom is arguably the most fascinating of all the Hellenistic Kingdoms, initially emerging from the Greek-Bactrian Kingdom.

2035: The end of the Greek community of Australia as we know it (Part Three)

In his previous article professor A.Tamis, referred to the consequences that will follow the year 2035 for the Australian diaspora.

An invitation to all: The Antipodean Palette Art Exhibition 2024 and Poetry Afternoon

The Greek Australian Cultural League (GACL) will again proudly present the Antipodean Palette Group Art Exhibition 2024.

You May Also Like

Greece’s holiday season to go uninterrupted as health minister rules out more lockdowns

Health Minister Thanos Plevris has ruled out introducing any new restrictions ahead of the Christmas period.

Perspectives: If we lose the language we lose everything!

What is it that makes us Greek? Recently in an article on the Quora site someone asked that same question and the answers were interesting.

Russian shelling halts evacuation of Ukrainian city of Mariupol

A Ukrainian official says a second attempt to evacuate civilians from Mariupol has failed due to continued Russian shelling.